Cruel twist for SANFL's Josh Scott after helping raise money for progeria sufferer Enzo
Updated April 15, 2019 15:20:23
When sustained howls of pain rose above the television broadcast and gameplay commentary, it was clear something was wrong.
Saturday’s SANFL match between Glenelg and South Adelaide was paused and cameras zoomed in on the source of the screams, Tigers forward Josh Scott, who was clutching his right arm which had been horrifically bent.
A sickening silence fell over the field, but watching on television at home was a child with far more serious problems.
Only 24 hours earlier, Enzo Cornejo had shaved off Scott’s red locks and beard to raise money for his medical treatment, but now, seeing his hero in so much pain, the seven-year-old was visibly upset.
Rapid ageing condition
Enzo was diagnosed with progeria, a rare genetic disorder that causes rapid ageing, just days before his third birthday.
He is one of only 156 cases of the disease worldwide and the only known case in Australia.
“Enzo was very upset because he saw Josh in pain,” Enzo’s mother, Catherina Llontop, said.
“Enzo knew something bad had happened to him.”
Scott was one of 14 people who helped raise about $11,300 at St Mary’s Memorial School on Friday by either shaving, cutting or dying their hair all in front of hundreds of excited and screaming school children.
The Greatest Shave Day, organised by teacher Lily McFarlane and the charity group Team Enzo, aimed to send Enzo and his family back to Boston for a review of a trial treatment program involving the drugs lonafarnib and everolimus.
The shave event doubled the family’s fundraising target.
“We are so emotional and so grateful for all your support and feel so humbled by the love, enthusiasm and bravery of every single person who has offered to shave, cut or colour their hair to help raise funds,” Ms Llontop said.
“A huge thank you to Enzo’s hero, Josh. You have raised so much awareness about progeria — I cannot believe the beard and all your hair is gone.”
A cruel twist
The following day, however, the savage nature of life flexed its muscles and crushed a man who’d set out to do good.
Scott appeared to break both his radius and ulna after hitting the turf in a pack and underwent surgery on Sunday.
Ms Llontop said her son and Scott had been friends since they met three years earlier, and Enzo had accompanied Scott while he ran the City to Bay fun-run — with the partial assistance of a wheelchair.
“Enzo saw when he got hurt and was very worried all weekend,” she said.
“They talked on Saturday night and Josh said he just has to deal with it.
“He said hospital was the best place to be and he has to be patient.
“But Enzo is looking to visit him when he’s better.”
It was perhaps a reminder that bad luck falls anywhere it likes, and nobody, even a hero in the eyes of child who suffers more than most, is immune.
A SANFL spokesperson said Scott’s injury was not season-ending and he was expected to play again later in the year.
Enzo and his family will travel to Boston in September.
Topics: diseases-and-disorders, people, charities, sanfl, australian-football-league, children, medical-research, medical-procedures, human-interest, health, community-and-society, adelaide-5000, glenelg-5045
First posted April 15, 2019 15:01:08